Meet the team
National Medical Director's Clinical Fellow
Care Quality Commission
- England - London (South)
Clinical Fellow Medical Oncology Guy’s Cancer Centre, Academic Clinical Fellow in GP Imperial College London, Visiting Lecturer at Guy's, King's and St Thomas' School of Medicine
Guy’s Cancer Centre, Imperial College, King's College London GKT School of Medical Education
- England - London (South)
- Georgina Kirby (Data Scientist)
- Jack Hilton (Health Strategist)
What is the challenge your project is going to address and how does it connect to your chosen theme?
Patient self-management is crucially important given the constraints on outpatient service delivery and the fact that health behaviours account for up to 50% of clinical outcomes. Better self-management is demonstrated to reduce burden on outpatient services.
Patients with colorectal cancer make vital daily decisions about their care, from adherence to chemotherapy to lifestyle choices on exercise, sleep and diet.
Despite this, patient find it prohibitively difficult to self-manage. Patients feel isolated and unsupported because NHS oncology services are unable to respond to the volume of need, information is inaccessible and symptoms are impossible to accurately track & understand. Poor patient self-management significantly worsens the patient experience and their outcomes (including poorer chemotherapy tolerance), & also increases burden placed on oncology outpatient services.
Our app supports patient self-management by allowing patients to easily track and understand their care.
What does your project aim to achieve?
Our app supports cancer patients to collect, track & visualise data about their care. We intelligently integrate this data on symptoms, side effects, medications and appointments with lifestyle data (exercise, sleep, diet and more) from smartphones and wearables. We know from preliminary studies that 94% patients use the app weekly. Better self-management reduces burden on outpatient & emergency services, with the dual benefit of gathering patient-reported data that can inform patient triage, support effective telemedicine appointments & enable faster response to urgent symptoms.
- Deliver app to 60 colorectal cancer patients over 3 months, in collaboration with NHS trusts (collecting qualitative & quantitative patient feedback to demonstrate improved patient experience/quality of life)
- Demonstrate downstream effect of better self-management on outpatient services through service engagement metrics and qualitative clinician feedback
How will the project be delivered?
We will be collaborating with NHS Trust partners to deliver the app to patients with colorectal cancer. We have a technical team in place to ensure ongoing GDPR compliance and safe handling of data. Patients will be identified through outpatient services. Patients will use the app to better track and understand their symptoms, receive information relevant to their condition, treatment and appointments and to better self-manage. Feedback will be collected throughout from both patients and clinicians. In addition to a series of patient and clinician focus groups and engagement events, we are engaging with the Q community to better understand the barriers to patient self-management and delivery of telemedicine services based on patient-reported data. Feedback will be fed into technical development to improve the app.
At the end of the 3-month period, qualitative and quantitative data will be used to conduct and economic and clinical evaluation or the effectiveness of the platform.
What and how is your project going to share learning throughout?
- Effects of providing supported self-management to patients, as an adjunct to traditional outpatient appointments
- Benefits of better self-management in reducing burden on outpatient care and generating patient-reported data, e.g. on symptoms, side-effects, medication-taking, exercise and activity, diet and mood
- How this data can be integrated into clinical services to support triage, inform telemedicine and enable more effective outpatient care; i.e. alternatives to traditional ways of conducting outpatient appointments
We will also produce a report evaluating how better patient self-management & tracking of key patient-reported metrics can better inform new models of care, such as outpatient telemedicine appointments. These learnings will be shared among our clinicians and organisational partners, as well as at key national cancer conferences, to our charity partners and at NHS stakeholder events. We will also make this available to the wider Q community.
How you can contribute
- Q members with an interest in supporting patient self-management
- Q members interested in using data to redesign services
- Q members with an interest in behavioural science
- Help from across the community in distributing the app in NHS Trusts across the UK
- NHS managers looking to collaborate on instigating the project in clinical settings
- Collaboration with expert patients to help develop our ideas and learn from the patient experience
- Oncology specialists from the multi-disciplinary team with experience in telemedicine to support the project (oncologists, CNSs, dieticians, physiotherapists)
|20 Jan 2019||Project group meet - ongoing review and adaptation|
|29 Jul 2019||Submit detailed proposal with idea refined based on feedback|
|20 Aug 2019||Q exchange shortlist announced|
|21 Oct 2019||Q exchange campaign if proposal is shortlisted|
|13 Nov 2019||Q exchange community event - funding awarded to winners|
|18 Dec 2019||Project planning meeting with all stakeholders|
|20 Dec 2019||Onboarding of patients identified through clinical provider|
|10 Jan 2020||Rolling recruitment 12/01 to 4/20 (5/month)|
|13 Mar 2020||Half-way point patient focus group: qualitative feedback|
|13 Mar 2020||Quantitative engagement metrics from app reviewed|
|14 Mar 2020||Webinar for Q community to update with progress|
|20 Mar 2020||Half-way consultations: qualitative feedback from clinicians|
|24 Apr 2020||Plan for report writing agreed|
|24 Apr 2020||Project group meet - ongoing review and adaptation|
|24 May 2020||Collating of qualitative and quantitative data to this point|
|24 May 2020||Project Report writing begins|
|26 May 2020||Final formal patient focus group completed|
|28 May 2020||Full data analysis: in-house team (Vine CTO and Strategist)|
|28 May 2020||Project group meet - ongoing improvement|
|28 May 2020||Results evaluation and report writing plan review|
|6 Jun 2020||Project group meeting to review data analysis findings|
|11 Jun 2020||Phase 2 of ‘findings report’ writing begins|
|24 Jun 2020||Report completed and distributed|
|27 Jun 2020||Webinar for Q community to update with findings|
|29 Jul 2020||Final consultations: qualitative feedback from clinicians|