Meet the team
Quality Superintendent Founder & Secretary, Radiotherapy Quality Special Interest Group (RTQ SIG) Secretary of London and South East Radiotherapy Quality Managers Group (LASER)
- England - London (North, East and Essex)
Quality Assurance Radiographer, Radiotherapy
Oxford University Hospitals NHS Foundation Trust
- England - Oxford
Patient Safety Manager, Therapeutic Radiographer
Oxford Academic Health Science Network Patient Safety Collaborative
- England - Oxford
Radiotherapy Quality Assurance Manager
Berkshire Cancer Centre, Royal Berkshire NHS Foundation Trust
- England - Oxford
Founder at Hootvox.
Hootvox - ePREM - Qualitative and Quantitative Analytics.
- England - national
Radiotherapy / Radiation Physics Quality Manager
Hull University Teaching Hospitals NHS Trust (HUTH)
- England - Yorkshire and Humber
Deputy Director of Patient Safety
Queen Elizabeth Hospital King's Lynn
- England - East
Quality Management Radiographer (Radiotherapy)
Weston Park Cancer Centre Sheffield
- England - Yorkshire and Humber
- Matt Williams
- Rachel Westmancott
- Caryl Matthews
- Kathryn Brocksopp
- Jack Elkes
- Neil Burley
- Renee Steel
- Caroline Salt
- Jill Emmerson
- K. Le Calvez
What is the challenge your project is going to address and how does it connect to your chosen theme?
WHY? Around 150,000+ cancer patients receive radiotherapy &/or chemotherapy annually across the UK but we know little about the quality of services from Friends & Family Test and National Cancer Patient Experience Survey. Service providers need individual-level data to guide quality improvement in Oncology that is currently not routinely collected by existing cancer datasets held by Public Health England.
HOW? Building on experience in collection of patient outcome data, we have designed CURIE-Collecting, Understanding, Responding & Interpreting Electronic data, a direct collaboration between service providers and patients to codesign, coproduce & codevelope an effective way to collect PRD at scale, benchsharing findings with not only radiotherapy community but a wider oncology services nationally in near-real time.
We use a core set of ideas and implement in 2 matching halves, QI project & clinical trial (CT). Both approaches will collect the same core datasets at the same time points.
What does your project aim to achieve?
To incrementally assess and improve the electronic collection & feedback of PRD in cancer patients in order to help drive continual quality improvement in cancer services
• Collect PRD data for cancer patients, include patient groups which are relatively silent in National Cancer Patients Experience Survey (NCPES) and Friends & Family Test (FFT)
• Compare effectiveness & efficiency of different PRD collection methodologies i.e. ongoing quality improvement project vs clinical trial
• Codesign, codevelop & coproduce a patient-driven methodologies to facilitate participating member departments to capture relevant and meaningful PRD
• Benchsharing results with the wider radiotherapy quality community for collective learning
• Investigate different electronic tools available
• Deliver near-real time feedback of PRD to allow a rapid improvement cycle in participating member departments
• Gain insight on cross-boundary project working collectively in radiotherapy quality community
How will the project be delivered?
CURIE is supported by oncology professionals across multidisciplinary backgrounds in UK & a range of cancer patients. Project members consist of Clinical Oncologists, Therapeutic Radiographers, Clinical Nurse Specialists, Trial Statisticians, Researchers, digital health innovator and patients, a mix of Q & non-Q members. We have a combination of strong clinical,technical & operational experience,including the design and delivery of multi-centre healthcare projects.
Codesign core themes including patient reported outcome & experience meausres. Both QI & CT approaches are designed to be patient driven to reduce administrative burden. PRD are collected at 3 different time points along the care pathway. Funding will be used to support implementation of QI appraoch to prove feasibility to carry out CURIE to monitor service quality & embed process for continual quality improvement.
Poor take-up by patients & providers. Sensitivity around performance data sharing.
What and how is your project going to share learning throughout?
This project idea started in 2017 & has gained momentum since then. Project progress is communicated via a single common electronic email platform on JISCMAIL & shared by all project group members.
Project development & progress are shared with all RTQ SIG members at quarterly regional quality meetings & annual national RTQ SIG meeting. Project group members will be able to bench sharing findings, identify improvement needs at local & national level which is not possible with current NCPES results & generic FFT.
CURIE PRD is designed for large scale implementation & content will be adapted as we gain insight in what works and what is not. However, even in its initial form it will deliver the largest multi-centre multi-cancer PR dataset in the UK. We will use CURIE to understand what PRD currently is, how it varies between groups & use incrementally to improve outcomes & experience.
Learning is applicable to wide range of conditions & can easily be adapted by other disciplines & Q members.
How you can contribute
- Review our idea, help us refine and improve it;
- Ask us questions if anything that is not clear to you, no question is too silly;
- Challenge our idea and methodology so we can take advantage of the collective wisdom of Q members; Share with us if you have similar experience / ideas in patient reported data;
- Explore potential opportunities for collaboration, pull efforts together to help providers to improve oncology service;
- Connect us to other groups / organisations if they may have similar interest in patient reported data;
- Be our critical friends, help us think, connect and work across professional boundaries for benefits of cancer patients / carers,
- Share your thought if you think it is relevant to the success of this project;
- Like our idea, join us if you want to be involved;
- You can also contact us using our project group mailing list RTQSIGPREM@jiscmail.ac.uk to share your thoughts.
|11 Jun 2019||Quarterly progress report at regional quality meetings|
|30 Jun 2019||Submit idea on Q exchange|
|29 Jul 2019||Submit detailed proposal and refine idea based on feedback|
|1 Sep 2019||Co-develop&agree CURIE PRD promotional materials&questions|
|10 Sep 2019||Quarterly progress report at regional quality meetings|
|20 Sep 2019||Q exchange shortlist announced|
|30 Sep 2019||3rd Project group meeting & finalise CURIE QI documents|
|21 Oct 2019||Q exchange campaign if CURIE PRD is shortlisted|
|31 Oct 2019||Build prototype, users feedback in design-build-test cycles|
|13 Nov 2019||Q exchange winners announced at Q community event|
|30 Nov 2019||Participating departments identify local CURIE PRD champions|
|10 Dec 2019||Quarterly progress report at regional quality meetings|
|31 Dec 2019||Set local service level agreement, consent, info governance|
|13 Jan 2020||CURIE PRD implementation in participating departments|
|15 Mar 2020||CURIE PRD development update at RTQ SIG annual meeting|
|16 Jun 2020||Quarterly progress report at regional quality meetings|
|15 Sep 2020||Quarterly progress report at regional quality meetings|
|30 Sep 2020||4th Project group meeting,ongoing review,adaptation &sharing|
|16 Mar 2021||CURIE PRD development update at annual RTQ SIG meeting|
|16 Mar 2021||Share implementation experience & benchsharing 1-year result|