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Improving confidence with STOMP to enable better care at home

To work across the Integrated Care System (ICS) to drive forward the use of STOMP-related interventions to support people with a Learning Disability, healthcare professionals and carers

Read comments 5
  • Proposal
  • 2023

Meet the team

Also:

  • Jack Hetherington, Information Analyst/Governance Officer, Sheffield Health and Social Care NHS Foundation Trust (SHSCFT)
  • Adam Butcher, Co Chair LECAG and Disability Staff Network, Information Analyst/Governance Officer, SHSCFT
  • Kristian Hudson, Implementation Specialist, Improvement Academy
  • Laura O'Byrne, Improvement Programme Manager, Rehabilitation and Specialist, SHSCFT

What is the challenge your project is going to address and how does it connect to the theme of 'How can improvement be used to reduce delays accessing health and care services'?

STOMP (Stopping Overmedication of people with a Learning Disability, Autism or both) is an important national agenda because it can improve a person’s quality of life by reducing side-effects of psychotropic medications and benefit physical health and improve the quality of life of a person’s families/carers and help them to manage the person’s care better at home. STOMP works on the principle of minimum effective medication dosage.

Sheffield Health and Social Care NHS Foundation Trust’s (SHSC) Learning Disability service is currently undergoing transformation and focusing on improving the quality of care, with a focus on evidence-based practices that improve quality of life, such as STOMP. To implement changes successfully, we must work with key partners in the integrated care system and beyond. This project will use a multi-disciplinary approach to improve awareness and use of STOMP across the South Yorkshire ICS with healthcare professionals, service users, carers and implementation specialists.

What does your project aim to achieve?

This project aims to implement STOMP across the region using interventions that will be co-produced and grounded in implementation theory. Implementation theory highlights that to normalise changes into practice, people must understand why the change is necessary. We want to bring STOMP to life by using Quality Improvement (QI) tools to develop appropriate training, coaching and a dedicated website/app.

Each aspect of the materials will be co-created with service users and carers. This will help everyone to better understand the need for STOMP from a service users’ perspective. For example, the map below shows the journey of a person with a Learning Disability. By listening to their carers, it became apparent that there were issues with language barriers, which were overcome through a clinician’s multilinguistic skills and understanding of the person’s cultural background, combined with translating STOMP information into multiple languages.

How will the project be delivered?

The project will be delivered by a multidisciplinary team including a consultant psychiatrist, Data Analyst, QI and implementation specialists and service users, all of whom are passionate about improving the lives of people with a Learning Disability.

The multi-disciplinary team will combine data from service users, carers and process measures to create a range of materials that will be shared through training, coaching and the website/app. The stories will include data such as days between contact that has been made for service users, as we have already seen that improving understanding of STOMP can help to appropriately reduce the amount of support required from the Learning Disability team, as support can be gained sooner from colleagues in other organisations, such as social workers, to be involved with STOMP interventions. We will capture feedback continuously to understand how STOMP implementation can continuously be improved and scaled up successfully.

How is your project going to share learning?

This project is all about generating knowledge, learning together, understanding how STOMP can be implemented successfully and how it actually improves quality of life for individual people. We want to share a wealth of examples of how STOMP improves peoples’ lives and understand what changes can be made to make STOMP more accessible.

This information will be analysed using implementation theory and results will be shared though improvement networks, e.g. Q and specialist networks, Royal College of Psychiatrists’ Intellectual Disability Faculty, so that we can help everyone nationally that are trying to make similar changes.

The process maps and improvement data generated will be regularly shared. For example, charts of time between contacts to the service related to side effects may be monitored to show improvements as STOMP is used for individual patients.

We will provide updates on the Q website, including links to progress, e.g. process maps and data.

How you can contribute

  • We would welcome any local Q members who want to be involved with this work across the ICS.
  • We know many Q members have experience with STOMP and we want to learn from your experiences to see how we can make STOMP more widely used in our region.
  • We will hold online sessions during the development stages that all Q members will be welcome to join.
  • We want to be able to translate all STOMP materials and make other changes to improve accessibility – if you have any advice for how to do this efficiently please let us know.

Plan timeline

30 Jun 2023 Literature review of STOMP and related interventions
28 Jul 2023 Recruit experts by experience and project manager
1 Aug 2023 Launch Comms across ICS-invite people to initial interviews & early adopters
15 Aug 2023 Devise plan to attend groups to share plans & gain feedback
1 Sep 2023 Develop implementation plan using normalisation process theory
18 Sep 2023 Conduct interviews to understand current understanding of STOMP across ICS
2 Oct 2023 Analyse interview data and current process measures
16 Oct 2023 Start developing materials and testing with early STOMP adopters
15 Jan 2024 Review improvement seen and start building into website/app
15 Feb 2024 Apply for further funding to scale up & launch app nationally
15 Feb 2024 Publish learning and launch website

Comments

  1. Great idea, this is a really important topic and still much to do. My only suggestion is to make sure you involve a Pharmacist as part of your MDT.

  2. Forgive me for my naivety, I know nothing about your specialty field, but I want to ask: If medications were started for  reason, how do you know you should stop them, or that the patient will not get worse without them? In my field, acute  geriatric medicine, we have STOPIT, which includes stopping sedating and psych meds, and I often feel uncomfortable that quality of life may be made worse. Sometimes if you ask the patient (and often we don't) they are very clear that they don't want to stop.

    Be interested to know howSTOMP works in relation to shared decision making.

    1. Guest

      Hassan Mahmood 20 Mar 2023

      Hi Paul

      Thank you for your post. In my view, STOMP (Stopping Overmedication of People with Learning Disability and/or Autism) is about minimal effective doses of medication and particularly focuses on medications prescribed off-licence for behaviours of concern (eg antipsychotics). I think that it is essentially a medicines optimisation initiative, which aims to provide person-centred care as part of a holistic multi-disciplinary team plan with a focus on the person’s wellbeing.

      From experience, it is not a “one size fits all” approach.

      I hope this is helpful.

      It is important to remember this is one of the national agendas to support people with a Learning Disability.  Others include LeDeR, which shows that people with Learning Disability have an earlier median age of death in comparison to the general population.

      Please have a look at a presentation I delivered at NHS England STOMP-STAMP Day in 2021 for some further information: https://youtu.be/mFJF6zFnTDo

  3. I am very interested in this initiative. This promises to help us to understand the root cause of continued over-medication of people with a learning disability which will allow us to take more targeted action across health and social care systems to improve outcomes and experience. I wonder if there are opportunities to involve the local authority, VCSE, education settings too.

    1. thanks Greg - you are right it is an area where there is great potential to improve quality of care whilst reducing risks associated with over medication (and reducing cost of unnecessary prescribed medication too).

      I like the idea of involving others from VCSE, LA and School / HEIs as well - wouldn't it be nice if we got referrals in asking for deprescribing and if this was supported as an intervention which we valued?

      There is a lot of cultural challenge here too, so vital to get relevant patient, carer and community involvement to help people understand the STOMP agenda and why it is so important.

      How might we engage with education providers so that this is part of the curriculum of Health Care workers (and others) for example?

      I suspect this will be familiar territory for primary care - how can we help GPs see this as a win win for us all?

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