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Supercharging integrated care for long-term conditions across whole patient journey

Test the concept of supporting patients with multiple long-term conditions in a single clinic, of many clinical experts from all care sectors, to reduce patient repeated appointments for each condition.

Read comments 7
  • Proposal
  • 2024

Meet the team

Also:

  • Prof P Cockwell - ICB LTC Clinical Lead & Renal Consultant
  • Suzanne Clearly – Chief Officer Strategy Partnerships Community NHS Trust
  • Dr. Adnan Nadir - Consultant Cardiologist UHB Trust
  • Dr. Amar Putanna – Diabetes Consultant
  • Dr. Matt Swallow - Respiratory expert
  • Simone Wilson – Head of LTCs (Primary Care)
  • Ramandeep Sandhu – Head of Pharmacy
  • TBC – Expert patient

What is the challenge your project is going to address and how does it connect to the theme of 'How can we improve across system boundaries?​

1 in 3 adults in the UK are living with a long-term conditions (LTCs), also defined as a non-communicable chronic disease. The current approach to managing service users, who have multiple LTCs, is usually based on traditional episodes of care where each condition is managed in isolation and reviewed separately, resulting in patients having avoidable additional appointments.

This disempowers the patient. Those at highest risk have multiple LTCs but are not supported to make decisions across LTCs that are based on their needs. This is an inefficient use of clinical resources with patients experiencing long waits on multiple specialist lists in secondary care and sub-optimal polypharmacy management plans. Despite shared pillars of care for many for circulatory diseases.

This also exacerbates health inequalities for patients from deprived communities, who find it difficult and costly to attend multiple appointments in hospital. We are pioneering cross sector collaboration to support those with multiple LTCs.

What does your project aim to achieve?

We will optimise care for patients with LTCs by working differently to support their care across the whole care delivery system. We know that multidisciplinary team working has proven success in single specialty initiatives, but they are later in the patient journey and for single conditions.

We will supercharge integrated care by combined working across multiple specialties. This will start from early in the development of disease by identification at a practice level. Patients will then be managed by integrated teams that combine expertise from primary care, community healthcare trusts and secondary care providers. This will have unique ability to create our first ever LTC specialist clinicians.

Patients will have fewer appointments and local easy to reach access, to reducing health inequalities. It will enable accurate use of disease modifying therapies where there is a known benefit and avoid potential harmful interactions that develop from having conditions managed in isolation.

How will the project be delivered?

Our pilot will enable clinicians working together from primary, community, secondary care and voluntary sector, on a single shared care record with full access to patient notes that already exists in primary care but whose potential has not been exploited for this joined up care approach. This ensures a much more efficient interface and communication between these clinicians from different sectors and organisations. This approach will also enable more rich and comprehensive care plans for patients with their whole medical history being available in detail to these clinicians.

This approach does not need the purchasing of new IT systems, instead it is a more sustainable and scalable approach of using existing resources in a different way that supports a new model of care.

We will utilise a comprehensive ‘lean sigma’ approach to develop clear and measurable project goals, maximise limited resources and continually improve using learning from each delivery sprint.

How is your project going to share learning?

The clinicians are from across the whole care delivery system helping to provide champions to promote this new way of working in all sectors. We will utilise patient experts to support co-design.

The use of a shared care plan, agreed with and reviewed by the patient, with cross-specialty support in system delivery will put the patient with LTCs at the centre of their care. The teams involved are working as senior faculty  the BSol ICS, which has the most challenged socio-economic profile and structure. There is a commitment throughout ICS to develop this model such into the cross-organisation working that is being developed. This will provide learning and sharing opportunities to support patients and clinicians in the ICS.

We will share this work through local, regional, national platforms including open learning forums to support the development of the model. This offers a unique opportunity for individual and wider workforce development.

How you can contribute

  • Would welcome ideas on how to ensure successful stakeholder engagement with such a complex areas of multiple specialties.
  • Would welcome ideas from those with NHS commissioning expertise on the kind of data and impact they would be interested in seeing to influence change in commissioning intentions, to ensure sustainability of this new way of working.

Plan timeline

1 Jul 2024 Hold first cross sector Clinical redesign workshops
14 Jul 2024 Agree collaborative ground rules for LTC MDTs and project
1 Aug 2024 Design searches to identify relevant LTC MDT patients
7 Aug 2024 Develop evaluation, user feedback and data collection processes
18 Aug 2024 Set-up and refine IT requirements
28 Aug 2024 Develop communication and engagement materials
2 Sep 2024 Stocktake review workshop to learn further lessons and refine work
6 Sep 2024 Launch first small scale test MDTs
17 Sep 2024 Refine LTC MDTs based on feedback and rollout more wider
17 Oct 2024 Collect Clinical, service user and staff feedback and impact data
10 Dec 2024 Share early learning of pilot
9 Feb 2025 Develop draft report of learning and sharing
2 Mar 2025 Share learning and findings locally and nationally including final report

Comments

  1. Guest

    Paul Cockwell 19 Mar 2024

    Thanks so much for the helpful comments both on line and from colleagues who have had the opportunity to review within the team and beyond. We are adjusting the proposal to reflect these comments.

    We are developing a framework in BSol ICB/ICS to ensure that any programme of improvement is seen by and shared across the system and developments that work for the population that we serve are embedded in our system transformation programmes and our commissioning plans.

  2. Guest

    Astrid 14 Mar 2024

    Great opportunity for a co-design approach with service users involved at the start. I also wonder whether it may be helpful to include Holistic Needs Assessments (usually involved in cancer care) but could possibly support centering the patient in this new collaborative way of working? Either way, seems a promising project!

    1. Hi Astrid,

      Thank your for helpful suggestions and insights. The idea of exploring Holistic Needs Assessments as a transfer of approach from other areas is really great suggestion, so big thanks for prompt and we will definitely explore. Especially, as putting the patient at the center of a cross organisation support mechanism, is exactly what we are aiming to do.

  3. Guest

    Suzanne Cleary 14 Mar 2024

    Great proposal and being local I know you have a track record of delivering improvements for patients. Also good to see you are starting with sustainability in mind by evidencing the impact for patients and the wider system, hopefully to provide evidence to commissioners / system provider collaborative partners that this is effective and efficient.

    1. Thanks Suzanne for support for this project and endorsement of our approach to pro-actively ensure we are thinking ahead about working with commissioners about what we need to ensure we sustain benefits of the changes we are looking to implement.

  4. Impressive collaborative partnership assembled to progress this innovative integration approach that’s centred on improving the coordination of care for people with multiple conditions. Couldn’t be more timely. Great to see how seeking input to strengthen patient engagement and advice on evidencing impact for commissioners. Wish you every success!

    1. Thank you Charlie for taking time to comment. We are lucky to have such amazing clinical and managerial support for this collaborative project across our whole integrated care system. We truly believe this approach can help address many of our patients challenges of wanting and needing more holistic care for their multiple long term conditions in a timely and reduced appointment manner.

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