Scalable digital learning, integrating families as partners in neonatal care
- Winning idea
Meet the team
- Rachel Collum and Nadia Leake, parents with lived experience and who are researchers.
- Dr Nicola Crowley.
- Julia Cooper, Care Coordinator, Neonatal Operational Delivery Network.
- Alex Mancini-Smith, National Lead Nurse for Neonatal Palliative Care.
- Anna Geyer, visual practitioner.
- Matt Stocker and Debbie Stocker, innovation and technical specialists.
What is the challenge your project is going to address and how does it connect to the theme?
Parents often feel helpless and like they don’t belong on a neonatal unit; they feel like their baby becomes a ‘hospital baby’ and they become ‘theoretical parents’. Bliss (2019) found 52% of neonatal staff experienced compassion fatigue; 24% experienced flashbacks; and 48% had considered leaving due to the impact on their mental health and wellbeing.
Whose Shoes is an award-winning co-production approach that brings humanity back into view. It underpins #MatExp, a powerful grassroots campaign that shares best practice across maternity and neonatal services. The approach was a key factor in the successful business case to build a Surgical NICU addressing the shared concern between Liverpool Women’s and Alder Hey Children’s Hospitals that babies who needed specialist surgery had to be transferred between the two.
We want to create a digital experience that enables learning from best practice, hearing all perspectives, and that embeds FICare culture in all contexts (hospital, home, remote, hybrid).
What does your project aim to achieve?
We aim to champion lived and learned experiences in Family Integrated Care and empower individuals, teams and neonatal networks to embed the five key FICare principles as laid out in the BAPM Framework for Practice:
- Partnership with families
- Empowerment of families
- Wellbeing of both families and staff
- Collaborative and enabling culture
- Family-friendly environments
We will develop and deliver:
- A neonatal mobile web app that brings voices alive and can be used by anybody, anywhere
- 36 neonatal Whose Shoes?® mini experiences, comprising scenarios, poems, audio stories, creative exercises and…actions!
- Accompanying facilitation exercises that enable bitesize learning experiences over coffee or on-the-job team meetings
By including marginalised voices and lived experiences of health inequalities, we aim to challenge deeply held beliefs and create greater insights about the barriers and prejudices some families face.
The project will take an agile, collaborative approach that identifies and addresses barriers to adoption, and widely shares best practice.
How will the project be delivered?
This is a highly collaborative project. Our team has a shared passion for FICare with a mix of healthcare professionals, educators, experts by experience, researchers, creatives and technical specialists! Together, we have considerable experience in neonatal care, improvement, digital innovation and leading national initiatives.
We plan to:
- Co-produce mini experiences: engaging with the Q Community and relevant stakeholders to create scenarios, poems and stories that share diverse perspectives.
- Use an agile approach: identifying requirements; developing the underlying concepts; delivering early prototypes; and developing iteratively with users to mitigate risk and encourage adoption.
- Engage our networks in rollout: implementing first with the East of England Neonatal Operational Delivery Network and other connections keen to be involved from the outset.
- Establish a FICare Community of Practice: sharing learnings and best practice around quality improvement in neonatal care.
- Evaluate impact: gathering insights, learnings, success stories, case studies, measures of uptake, and in-app feedback.
How is your project going to share learning?
This will be an open access, free to join neonatal mobile web app. Wide use will be encouraged through the Q Community and our very diverse networking group of collaborators on this project, with the potential for it to be used by all neonatal units, Neonatal Voices Partnerships, and anyone connected to FICare.
We have a strong track record in grassroots change that draws people in and makes an impact by tapping into our shared humanity, and through our strong social media presence. We will build on the powerful and well-established #MatExp campaign, of which project team member Gill Phillips is co-founder, and by harnessing the already established #FICare and #NICU hashtags.
The FICare Community of Practice, which we will set up within the Q Community, will be central to sharing learning.
We will feature learnings in the Wild Card podcast and create a Steller Story to share the journey.
How you can contribute
- Whose Shoes® is always a highly collaborative process. We would LOVE to have your help please!
- Join our Community of Practice to discuss Family Integrated Care and swap ideas and experiences.
- Help us crowdsource different perspectives.
- Neonatal community can contribute to the scenarios, poems, stories, moments.
- Wider Q Community can volunteer their live voices – e.g. read a scenario or poem.
- Suggest / design creative exercises – the Liberating Structures community will love this!
- Pilot and test the new resources and give feedback.
- Share prior experience of digital projects, including pitfalls to avoid.
- Link with other teams using the tools.
- Suggest supporting resources.
- Share the ‘Wild Card podcast’ widely – specifically episodes around neonatal care and Family Integrated Care: https://www.buzzsprout.com/1838805/9873558-18-family-integrated-care-what-do-parents-say
- Support us in scaling adoption across the country by tweeting, sharing and telling colleagues.
- Use the Community of Practice to discuss progress in embedding FICare.
- Share ‘lightbulb moments’ and write up as case studies!
|14 Jun 2022||Engagement with Q Community throughout project, and beyond|
|14 Jun 2022||Social media engagement throughout project, and beyond|
|23 Jun 2022||PROJECT STARTS - Development team project kickoff session|
|27 Jun 2022||Start gathering ideas for 36 'mini experiences' from neonatal community|
|1 Jul 2022||Commence design/wireframing of mobile web app and initial brand work|
|15 Jul 2022||Early stage testing of prototype web app outline and concept|
|8 Aug 2022||Development of MVP mobile web app ready for 'mini experiences'|
|1 Sep 2022||Bi-monthly team progress review|
|1 Sep 2022||Choose 6 'mini experiences' for pilot test and record audios|
|1 Sep 2022||Start to establish FICare Community of Practice|
|8 Sep 2022||Develop supporting resources, and research links to best practice|
|15 Sep 2022||Add 'mini experiences' content and audio into MVP app|
|20 Sep 2022||Plan and organise evaluation of toolkit with pilot users|
|3 Oct 2022||Commence testing of mobile web app with pilot 'mini experiences'|
|24 Oct 2022||Review feedback from users of pilot test (East of England)|
|1 Nov 2022||Bi-monthly team progress review|
|15 Nov 2022||Integrate suggested changes and improvements from community for final product|
|5 Jan 2023||Bi-monthly team progress review|
|5 Jan 2023||Develop remaining 'mini experiences' with experience gained from pilot|
|5 Jan 2023||Start to record remaining audios and finalise resources|
|6 Mar 2023||Bi-monthly team progress review|
|7 Apr 2023||Plan launch for maximum impact and pre-engage supportive stakeholders|
|7 Apr 2023||Test mobile web app and full content for selected users|
|1 May 2023||Team pre-launch readiness review|
|9 May 2023||Launch mobile web app with wide promotion across neonatal networks|
|22 Jun 2023||Team retrospective and lessons learnt|
|29 Sep 2023||Creation of Steller Story to share the journey|
|31 Jan 2024||Gather success stories, case studies, uptake measures and feedback|