Skip to content

Exchange

Educate, Engage, Empower. A new way of CKD self-management

Driving all aspects of Chronic Kidney Disease (CKD) self management by educating, engaging and empowering patients resulting in improved health outcomes for patients and efficiencies for the NHS

Read comments 3
  • Idea
  • 2022

Meet the team

Also:

  • Dawn Mistry (MaPPs)
  • Robert Lewis (Wessex Kidney Centre)

What is the challenge your project is going to address and how does it connect to the theme?

56% Chronic Kidney disease (CKD) patients report it has an extreme impact on quality of life and CKD costs the NHS £15bn a year. CKD in the UK is growing 8% a year, current management practices are unsustainable and patients are not best equipped to manage their own condition.

A collaboration between Ardia Digital Health, Portsmouth Hospital and University of Portsmouth led to MyRenalCare – a digitally enabled and sustainable new way of working that;

a) educates patients with engaging bite sized videos (versus word heavy physical leaflets)

b) engages patients by enabling self monitoring, remote monitoring and 100% digital consultations by clinicians (versus clinician led care and expensive face to face appointments)

c) empowers patients by enabling them to contact their clinical team any time they need

A pilot with Portsmouth Hospital has demonstrated 50% increased capacity for the NHS, 98% of users would recommend it to other patients and improved decision making for clinicians.

What does your project aim to achieve?

The project aims to further develop the MyRenalCare digital solution and approach to CKD self-management in two ways:

1. Creating more animated bite sized education videos for CKD patients that will be available on multiple social channels making it accessible to all CKD patients nationally (see example below). Current education materials are very word heavy and hard to digest especially in areas such as Portsmouth that have poor literacy rates and would therefore significantly help to improve health inequality. In addition being on social will significantly increase reach vs current physical leaflets.

2. Integrating MyRenalCare with MaPPs so users can instantly access up to date patient-friendly and personalised medicines information all in one place ensuring that more people can access this valuable resource.

Education and understanding CKD and how to manage it is the foundation for any patient to be able to self-manage their chronic disease effectively.

How will the project be delivered?

The project has two parts:

  1. Animated educational content.  MyRenalCare has an established relationship with the University of Portsmouth Faculty of Creative and Cultural Industry (CCI) and the Wessex Kidney Centre (WKC).  This project will leverage the clinical knowledge of the WKC and the creative capabilities of the CCI in creating and measuring impact of educational content.  This will go beyond ratings and number of views to include focus group feedback from the diverse population of individuals the content aims to reach.  Content will be available to all via multiple social media channels.
  2. Integration with MaPPS.  MaPPs already deliver a unique world class patient health information system providing trustworthy, up-to-date simplified information on licensed and unlicensed medicines available in the UK and are recognised globally.  This collaboration will expand the reach of their digital content to individuals living with CKD using MyRenalCare.  Impact assessment will be as described above.

How you can contribute

  • We would love your feedback and thoughts on the project
  • Innovative ideas to measure impact of educational content
  • How to maximise exposure of content to individuals with CKD

Comments

  1. Hi Nichola

    Reading your idea brought to mind work in Keele that was supported through the Q Lab https://beefree.org.uk/

    A previously funded Q Exchange project from South Bank University was also about a digital kidney care app https://q.health.org.uk/blog-post/working-with-people-and-systems-to-improve-patient-care-through-technology/

    There may be some useful learning in that for you?

    best of luck with your idea

    Jo

  2. Guest

    Jonathan Raj 3 months, 1 week ago

    I believe that this project has the legs to get the power of health back into the patient's hands. Of course, physicians will benefit from empowered and engaged patient group as will the wider NHS.

  3. Guest

    venkat gangaram 3 months, 2 weeks ago

    Excellent work and will help improve patient care

Leave a comment

If you have a Q account please log in before posting your comment.

Read our comments policy before posting your comment.

This will not be publicly visible

Please note that you won't be able to edit or delete comments once posted.