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Engaging the least engaged with Type 1 Diabetes

An online hub dedicated to people with Type 1 Diabetes, directing them to key information and access with a specialist nurse, with the aim of reaching those less engaged.

Read comments 5
  • Proposal
  • 2020

Meet the team

Also:

  • Cherry Brennan- Commissioning Manager, Southampton City CCG
  • Dr Patrick Sharp - Consultant in Diabetes, Solent NHS
  • Beth Kelly- Type 1 Diabetes Specialist Nurse, Solent NHS
  • Helen Ponsford- Diabetes Specialist Nurse, UHS NHS

What is the positive change that has emerged through new collaborations or partnerships during Covid-19 that your project is going to embed?

The Southampton Diabetes project team was formed in 2019, out of a recognised need to work more collaboratively to improve health outcomes and patient experience. The team held a patient and people event in Jan 2020 in collaboration with the partnering trusts, Diabetes Research and Wellness Foundation and health care professionals working in the local area. Patients expressed the need for more information, preferably in an online format.  Information alone is not going to engage those less engaged and for that reason we have appointed a Diabetes Specialist Nurse to be focused for people with Type 1 diabetes. This online hub will provide direct access to the nurse.

Providing this online hub will meet the needs of patients and aims to reduce the number of hypo/hyperglycaemia events leading to ambulance care, A&E attendance and hospitalisation. This resource compliments our focus to reduce amputation and sight loss.

What does your project aim to achieve?

Aim: To reach out to the less engaged population with Type 1 Diabetes and support them to improve their health and well being outcomes.

Objectives:

  • Provide an online resource
  • Codesign content which contain local and national information and is accessible in different languages.
  • Access to specialist educational group support
  • Access to Diabetes Specialist Nurse in Type 1 Diabetes

How will the project be delivered?

This idea has had considerable preparatory work, although it requires additional support and funding to achieve its aims.

We have:

  • gathered local figures to understand the problem.
  • engaged stakeholders in our local trusts and commissioning.
  • held a patient engagement event
  • reached out to the local population by conventional means and gathered data for comparative purposes.
  • appointed a specialist nurse to work on this project.

Our project team will be expanded to include people with lived experience. The project team will set up the online hub on an existing web-based platform to include the educational and accessible resource to the Diabetes Specialist Service. We will online hub will be promoted through our patient communication channels.

We will measure the number of contacts received as a service as a result of this initiative and compare this against the conventional approach. We will document and review clinical outcomes.

How is your project going to share learning?

The clinical issues we have outlined in our local population are not unique and are common across the country with minor variations in headline figures. Anything we learn from this project will be readily transferrable across the country.

We will enhance our existing engagement and lines of communications with engagement events to share the learning. This would include use of Blog, posters/ leaflets, social media, podcasting, local radio, CCG newsletter, diabetes transformation newsletter, short patient films, peer support outreach workers and community engagement events which are locally and nationally accessible.

Following evaluation of this project, our ambition is to write a paper for publication, share at conferences and reach out to other providers within our network and beyond, to share learning.

How you can contribute

  • Strategy- Diabetes is a national priority. We would like to link with teams or networks nationally, who are interested or experienced in developing digitally based education and support for people living with other long-term conditions.
  • Critical friend- It would be helpful to have a critical eye from someone who understands the technical challenges and considerations of digital innovation for health.

Plan timeline

1 Apr 2021 Co-design
1 Jun 2021 Development
1 Sep 2021 Evaluation
1 Sep 2021 Implementation

Comments

  1. Looks like a great project. Lots of engagement. Commitment and passion shows through

  2. Hi Carl,

    I used to work in the Improvement team at Diabetes UK, and have now joined the Q team.

    At Diabetes UK I worked with teams in the East Midlands and Northern Ireland who wanted to improve transition care for young people with Type 1 diabetes. Two teams came up with ideas around building websites to meet this particular age group’s needs  - and to increase the accessibility for diabetes support and education.

    You can find out more information here:

    And summaries of the specific ideas here and here

    It could be worth getting in touch with the team at Diabetes UK (details on the webpage), who may be able to link you up with the two teams above who have developed websites. They could be useful connections for your idea and the future. Hope that's helpful.

    Best of luck with your idea.

    Thanks,

    Zarina

    1. Guest

      Bethany Kelly 15 Oct 2020

      HI Zarina, nice to see you again!!

       

      I worked on the transition DUK days with you! hope you remember. We developed the leaflet.. so we are really excited to hopefully be able to extend this to the e-hub now.

       

      So have access to all of that info to use from when we did the DUK days.

       

      Thanks.

       

      Beth.

  3. Dear Pete,

    Sounds a great idea and very much up for partnering with Matt. I make contact. Thanks Carl

  4. Hi Carl,

    Myself and my colleague Emma Adams (Health Transformation Partnership) are supporting the Health Foundation this year by fostering conversations between Q members and encouraging collaboration. We were Exchange applicants last year, so we’re hoping that our experience will help us to help others, as their ideas take shape.

    I've just posted a comment to Matt on the project, 'Supporting frail patients with diabetes in a virtual clinic age' as it struck me how similar your projects are in their intentions (even though different in scope). I wondered if it was worthwhile connecting to share learning?

    Best of luck with your idea.

    Pete

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