Q Exchange
Sustainable Digital monitoring for Children with Eating Disorders
- Idea
- 2020
What is the positive change that has emerged through new collaborations or partnerships during Covid-19 that your project is going to embed?
Patients and family’s no longer have to travel to outpatient appointments for weekly physical health and weight monitoring. Monitoring can be completed within the privacy of a patients home environment at any point of the day.
The use of remote monitoring during the last five months has been shown to increase patients concordance with interventions and enable changes in patients health status to be identified earlier.
Members of the MDT are now able to track patients trends over a period of time and make clinical decisions regarding their ongoing management without needing to assess them in a clinic setting.
The project has been a great success however it is reliant on securing substantive funding to enable it to become a normal treatment intervention post COVID.
What does your project aim to achieve?
Objective:- To maintain patient safety using Digital Health Technology to monitor Children with Eating Disorders Physical Health Status therefore enabling access to the most appropriate support.
Expected Improvements:-
-Increased Concordance
-Zero Outpatient Appointments for Physical Health Monitoring
-Increased Patient and Family Autonomy
-Decreased time taken off school to attend appointments
– Increased concordance with Meal Plans
The service would be available to patients who own their own technology or the Digital Health service can supply Bluetooth devices therefore reducing health inequalities
How will the project be delivered?
The project is registered on the LIFE QI system and it will continue to use LIFE QI platform to monitor/ develop and learn from.
Staff from CFT/ Kernow Health and Primary Care will continue to be involved in developing the project.
The impact of the project will be measured in terms of :-
Patient Satisfaction
Clinician Satisfaction
Cost Savings through not using outpatient settings/ reduced staff travel.
Numbers of patients using the system/ length of time open /prevention of admission
Case Studies regarding the impact it has had form a patient / carers Voice.
How is your project going to share learning?
The project has already been shared by the hosting Digital Health Platform as a Case Study of innovative practice.
It is envisaged wider connections will be initiated via the Q community/ Twitter.
It is aimed that the study will be written up in the form of an academic paper.
How you can contribute
- -Is the current Digital Formula we are using the best?
- -How to initiate Patient Engagement and feedback- ideas
- -The project currently sits between organisations- how can we integrate so organisational processes are not an issue
Comments
Yincent Tse 19 Oct 2020
Good luck - I grew up in Cornwall so know the challenges with distance and remoteness.
Do you have any pilot data on the accuracy of remote monitoring? I got stung recently doing home manual BP monitoring during COVID and got caught out as the measurements were quite inaccurate
Peter Dudgeon 25 Sep 2020
Hi Vicki,
Myself and my colleague Emma Adams (Health Transformation Partnership) are supporting the Health Foundation this year by fostering conversations between Q members and encouraging collaboration. We were Exchange applicants last year, so we’re hoping that our experience will help us to help others, as their ideas take shape.
I've spent some time today looking at all Q Exchange ideas in the digital space. It struck my when reading your project and 'Using telehealth to support patients on chemotherapy at home' that there are a number of commonalities (despite the specialities being so different) - especially around a shift to self-management in these COVID-restricted times. Perhaps you may have some thoughts on the contributions they are asking for, and vice versa?
I'll continue to look out for other connections which may be helpful and I wish you well with your idea.
Best wishes,
Pete
Rosie Graham 23 Sep 2020
There is a brilliant project called FREED (First episode Rapid Early intervention for Eating Disorders) led by South London and Maudsley NHS FT that it might be helpful to connect with and share learning.
More info here: https://freedfromed.co.uk/ and here: https://www.health.org.uk/funding-and-partnerships/programmes/making-freed-%2528first-episode-rapid-early-intervention-for-eat
Lyse Edwards 17 Sep 2020
This looks really interesting and something I know our team have been exploring!
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