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What is the positive change that has emerged through new collaborations or partnerships during Covid-19 that your project is going to embed?

The Kent Surrey Sussex Heart Failure Collaborative has existed since 2015, and met once a year to discuss and exchange learning, issues and ideas for change. This had included an idea for group education for heart failure patients, which had been running as a QI project in Kent.

With Covid, the chance to meet virtually has meant the collaborative together more regularly via Teams, to discuss recovery plans.

This proposal brings those two things together – and seeks to explore how the collaborative network can join up their resources to provide group education sessions for heart failure patients across normal boundaries.

What does your project aim to achieve?

We want patients to benefit from the advice and support of heart failure professionals and the peer support of their fellow patients, in this new virtual world. Patients have been missing out on the opportunity to learn from and support each other, and always value additional time to understand their condition, and what it means for them. We did a workshop to inform the original pilot in which this time to be with others in the same position was hugely valued.

We want to make best use of the clinical resources and time from across the patch to run these sessions, to make sure they are deliverable regularly.

How will the project be delivered?

The collaborative needs support to create a process for this idea, and establish ways of working that can be taken forward. This is likely to cover agreeing an information governance approach, the  platform to use, booking system, rota for clinical presenters. This may be complex, depending on the number of organisations involved.

We will also seek to understand patients’ view on this new model of peer support and education.  We will also want to understand issues relating to digital exclusion and data poverty.

How is your project going to share learning?

Locally the collaborative will share learning through its members. The collaborative’s steering group includes members from regional representatives from NICE, British Heart Foundation, Public Health England, KSS Academic Health Science Network, NHS England SE region who will all be able to share learning with their regional and national contacts.

How you can contribute

  • The clinicians are confident in the material needed for the sessions, but would really welcome ideas and learning from others about managing virtual patient groups.

Comments

  1. Hi Helen & Paul How near to https://www.nice.org.uk/guidance/ng106/chapter/recommendations are we?

    For my part I am a M-S HF Patient with LVSD with EF 35% Most HF Patients would benefit from Face 2 Face Cardiac Rehabilitation which creates peer support, new learning, friendship and reduces social isolation.

    If before Covid-19 no Cardiac Rehabilitation was offered then does virtual heart failure group education fill the void?.

    Pumping Marvellous the HF Charity & British Society of Heart Failure hold regular virtual zoom 'get to together' sessions.

    Patients & Carers in the Kent Surrey Sussex Heart Failure Collaborative area are entitled to recommendations made by NICE for Heart Failure if this was put forward in my area of BNSSG STP CCG then  I would be happy to support Q idea as Community Heart Failure service is in place your idea to test peer support & education makes it a done deal where 'Lived experience peer support tutors are part of the team Best Wishes

     

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