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Meet the team

Also:

  • Michael Kosmin - Consultant Clinical Oncologist, National Hospital for Neurology and Neurosurgery
  • Hani Marcus - Consultant Neurosurgeon, National Hospital for Neurology and Neurosurgery
  • Andrew Gvozdanovic - Neurosurgical Trainee, National Hospital for Neurology and Neurosurgery
  • Georgina Kirby - Data Scientist and CTO at Vinehealth
  • Vinehealth Expert Patient Advisory Board

What is the positive change that has emerged through new collaborations or partnerships during Covid-19 that your project is going to embed?

We collaborated with Royal Marsden NHS Foundation Trust to undertake a mixed-methods longitudinal study evaluating the platform’s impact on patient wellbeing, health-related quality of life, PROMS data collection and self-management in cancer patients during COVID-19, at a time of higher anxiety and reduced face-to-face time. 49 patients receiving SACT were recruited across all tumour types from Royal Marsden.

Results:

  • 97% patient engagement
  • 100% digital completion of EQ5D
  • Positive trends in QoL
  • Extensive learning and positive qualitative feedback from independent patient semi-structured interviews

Findings suggest the app can support self-management in patients not already employing self-management strategies. We demonstrated that the app is an attractive tool and source of information for patients.

Having evaluated the app across all cancer types, we now plan to specifically tailor it to brain cancer to be able to embed at NHNN.

What does your project aim to achieve?

Unfortunately, brain cancer patients have a high degree of unmet needs, largely due to the complex and multimodal requirements of their care. These needs are exacerbated by COVID due to higher anxiety and less face-to-face time with care teams. The Vinehealth app will work alongside current care pathways at NHNN to enhance the patient experience by empowering patients to actively engage in their care; by capturing highly relevant data points (symptoms, side effects of their treatment, and medication adherence) and through machine learning driven educational content provision.

Through this, people living with brain cancer can better self-manage from home and make more informed decisions about their care.

This project aims to investigate whether use of the VineHealth application can:

  1. Improve the patient experience of their care pathway by providing remote, personalised support
  2. Remotely collect PROMS data in a patient-friendly, convenient manner to enable better understanding of patient needs during COVID

How will the project be delivered?

The project will be delivered in phases according to the IDEAL framework for surgical innovation at the National Hospital for Neurology and Neurosurgery (NHNN).

Phase 1 will deliver the VineHealth application to 6 patients for a focused 1-2 week proof of concept study to evaluate the outcomes and study parameters planned for use in future studies. This will also aim to generate areas of improvement for both application integration into the cancer pathway, usability and function of application, and research planning.

Phase 2a will include 30 patients. This will be a single armed, prospective feasibility study aimed at evaluating in more depth, the holistic impact of the VineHealth application on the biopsychosocial aspects of patient health. We will also use this phase to begin assessing impact as a clinical decision support tool. We will undertake concurrent fine-tuning of the app to adapt to patient needs throughout.

How is your project going to share learning?

Key learnings:

  • Effects of providing remote supported self-management to patients, to better cater to their needs during COVID
  • Benefits of better self-management in reducing burden on stretched cancer services during COVID and remotely gathering patient-reported (PROMS) data to better understand patient needs
  • How this data can be integrated into clinical services to support triage, inform telemedicine and enable more effective outpatient care

We will also produce a report evaluating how better patient self-management & tracking of key PROMS can better inform new models of care. These learnings will be shared among our clinicians and organisational partners, as well as at key national cancer conferences, to our charity partners and at NHS stakeholder events. We will also make this available to the wider Q community.

How you can contribute

  • Q members with an interest in supporting patient self-management
  • Q members interested in using data to redesign services
  • Q members with an interest in behavioural science
  • Help from across the community in distributing the app in NHS Trusts across the UK
  • NHS managers looking to collaborate on instigating the project in clinical settings
  • Collaboration with expert patients to help develop our ideas and learn from the patient experience
  • Oncology specialists from the multi-disciplinary team with experience in telemedicine to support the project (oncologists, CNSs, dieticians, physiotherapists)

Plan timeline

1 Nov 2020 Project planning meeting with all stakeholders
15 Dec 2020 Project defining meeting with all stakeholders
17 Jan 2021 Final project planning meeting with all stakeholders
1 Mar 2021 Rolling patient recruitment 1/3/20-1/6/20
15 Apr 2021 Half-way point patient focus group: qualitative feedback
15 Apr 2021 Quantitative engagement metrics from app reviewed
21 Apr 2021 Half-way consultations: qualitative feedback from clinicians
21 Apr 2021 Webinar for Q community to update with progress
1 May 2021 Plan for report writing agreed
31 May 2021 Project group meet - ongoing review and adaptation
7 Jun 2021 Final formal patient focus group completed
7 Jun 2021 Full data analysis completed
7 Jun 2021 Project Report writing begins
30 Jun 2021 Results evaluation and report writing plan review
5 Jul 2021 Project group meeting to review data analysis findings
15 Aug 2021 Report completed and distributed
1 Sep 2021 Focus on dissemination (publication, Q webinar) - 1/9/21-1/3/22

Comments

  1. Guest

    Rayna Patel 6 months ago

    Thank Amer - great to hear. Please do get in touch if you'd like to discuss in more detail; we'd love to have your input

  2. Guest

    Hayley Pedrick 6 months ago

    A much needed enterprise! Brain health is such an important focus because if you are engaging in  dietary, exercise and self care practices to support the brain, the whole body benefits! A holistic approach which provides support through the isolation and uncertainty of the pandemic would add huge value to every patient on your program. I wish you all the best in raiding the funds you need.

  3. Guest

    Peter Fish 6 months ago

    Looks like a very valuable project - patients will definitely benefit from the support the Vinehealth app can bring. Encouraging active self-management and proving accessible, and clinically sound, information when its needed most will undoubtedly lead to improved patient journeys. Looking forward to seeing the results.

    1. Thanks very much Pete - we'll be sure to share the reports with you, and look forward to hearing your feedback. All the best

  4. Guest

    Jean de Fougerolles 6 months ago

    Great project Rayna and thanks for sharing in this article. This work is crucial, especially given the current COVID pandemic that makes face to face care so difficult. The use of cutting edge technology that allows patients to track and share symptoms with their doctors and carers should accelerate positive outcomes for them and future patients. Thank You

  5. Guest

    Manish Patel 6 months ago

    Great initiative supporting an actual clinical lead - one of many that is underserved in the current circumstances. Well done Rayna & team!

  6. Guest

    Spencer D 6 months ago

    Great initiative here, it can't be emphasised enough how much of an impact the side effects from treatments can effect wellbeing during treatment. Excited to see how combining behavioural science with AI can enhance patient wellbeing. This shouldn't be limited to brain cancers. I'll be eagerly awaiting the results of this project.

    1. Thanks very much, Spencer - look forward to sharing and hopefully discussing the results if we are successful!

  7. Guest

    Kieran Hill 6 months ago

    This is a fantastic project, Rayna. Keep up the amazing work you and the Vine Health team are doing. Patients are extremely vulnerable during lockdown and projects like this are much needed for morale and support.

  8. Guest

    Clare Smith 6 months ago

    This is a wonderful use of technology giving patients more control of their situation when they are most vulnerable, I applaud you.

  9. This has so much potential to support patients. I wonder if there is an interactive element that might add value? Being able to message etc. Also many years ago I was involved with some interesting research on brain cancer patient experience - might be helpful in some way: https://bmjopen.bmj.com/content/bmjopen/4/10/e005550.full.pdf

    Good luck!

    1. Thanks Charlotte - really useful context. The interactive element is now in the app in basic form with further development in progress. Look forward to discussing further!

  10. Guest

    It's so important to give patients the ability to self-manage - and this is all the more important during the COVID-19 pandemic. Brilliant initiative - best of luck with it!

  11. Guest

    Regina Hartman 6 months ago

    With a background in both healthcare technology and behavioral economics, I have been closely following, and honestly fascinated by, the incredible work being done by the VineHealth team. A personal friend of mine has used their platform to help manage her care and she’s confided in me that she has never felt more informed and empowered thanks to the insights she’s gained throughout the process. I can only imagine that this partnership would allow many more patients to be in this same position. Onward and upward, Regina

  12. Guest

    Georgina Kirby-Blair 6 months ago

    As a data scientist I think it's so important that data driven technologies like this are adopted in the secondary care setting, particularly during COVID-19. It's absolutely essential that patients receive the best care possible and that we start to understand more about what they're experiencing at home through PROMs data.

  13. Guest

    Simon Blakey 6 months ago

    I'm really supportive of this project and even more so given the current COVID pandemic that makes the delivery of face-to-face care so challenging. Using modern technology to enable patients to feed back symptoms more accurately with the treatment team I'm sure have a strong positive impact on the treatment process as a whole

  14. Guest

    Michael Kosmin 6 months ago

    Patients with brain cancer often have complex needs that can be challenging for their care teams to meet, even in normal times. The limited face-to-face contact that is possible at present has made this even more difficult. This project has the potential to hand some control of their care back to patients, providing an effective  communication channel to their team, along with remote, personalised support. I look forward to seeing how this project develops into a leading source of support for brain tumour patients alongside augmenting their relationships with their medical teams.

  15. Guest

    Jeremy Luzinda 6 months ago

    What an incredible project given the current tailwind of less direct face-to-face time with clinicians due to Covid - this technology is absolutely essential!

    Please reach out to me if I can support in any way - I'm really excited about this.

  16. Guest

    Chris Smith 6 months ago

    My wife works as a doctor and I've seen the devastating impact Covid-19 has had both directly, but perhaps as importantly, indirectly through reducing face-to-face time with clinicians. Technology that can work to plug some of these gaps to improve the patient experience, allowing for better ongoing support is just brilliant. I fully support your project and do reach out to me if I can help in any way.

  17. Guest

    Joseph Thornton 6 months ago

    I love to see technology being used is such a fantastic way for patients. This is just what is needed today!

  18. Guest

    Patrick Olden 6 months ago

    A really important piece of the puzzle in helping cancer patients get in control of their care.

  19. Guest

    Anouj Patel 6 months ago

    This is an excellent initiative, using technology-led solutions to improve patient outcomes. Much needed generally, and more so now, at a time when COVID is exacerbating the suffering of brain cancer patients. Very much looking forward to the results, and I hope that this trend continues in other areas of healthcare.

  20. Guest

    Blaithin O Dea 6 months ago

    • Fantastic app. This is the future of personalised care. Several psychological benefits of having a platform like this to support people with cancer to feel connected to a community, particularly with the increased isolation now faced by so many. Would love to see this rolled out to other chronic conditions too.
  21. Guest

    Keith Tsui 6 months ago

    Remote patient monitoring has huge potential to improve patients lives and the vine health platform is specifically designed for cancer patients. This project could really demonstrate the impact of the vine health app in supporting people with brain cancer, which is especially needed with the covid19 pandemic.

  22. Guest

    I have seen first hand with a family member how devastating Brain cancer can be. Providing care truly becomes very difficult. Great initiative, and I wish you all the best!

  23. Guest

    Jyotika Patel 6 months ago

    This is a great way to use technology to support patients in this way.

  24. Guest

    Serdar Gemici 6 months ago

    As a co-founder of digital health startup, I truly appreciate what Vinehealth do. Digital assistance have become a complementary part of treatments. Especially, cancer patients need a professional self care and communication tool. I believe Vinehealth will create global impact on this area.

  25. Guest

    This is a great project especially in current times when cancer patients are more vulnerable and need more guidance and positivity. Some of the patients who must have felt isolated and terrified cause of the pandemic will need this kind of support in their fight against this disease.

  26. Guest

    Amer Hasan 6 months ago

    Great initiative to leverage app technology to help improve self-care in these challenging times

  27. Guest

    Nicolas O 6 months ago

    I have seen multiple people going through cancers, and I have witnessed first hand the difficulty of offering a tailored holistic approach to their care.

    I imagine that the current COVID situation, with the loneliness and the focus on deaths, add to the anxiety of cancer patients.

    Brain cancer is one of the most stressful diagnose, as the brain is so close to the feeling of identity.

    The proposal, from a company with an excellent track record of delivering good research and building a product that people actually want to use, is well specified, with more than adequate planning and precise steps to deliver. I am particularly impressed bynthe focus on actionable data.

    Because of economy of scale, the potential pay off for a successful app is huge.

    I can not wait to see the results of this research and the positive impact on the lives of cancer patients.

    1. This is really kind of you to say, Nicholas. If you ever want to take a closer look at the platform and give any feedback or suggestions on how we could improve it based on your experience we'd love to hear from you. Thanks very much indeed, Rayna

  28. Guest

    Hani Marcus 6 months ago

    Brain cancer is a devastating disease for patients and their families. This project has the potential to really improve the care of our patients with brain cancer by empowering them to take control of their own health, and providing their clinical team with more information to guide decisions on treatment options.

    1. Thanks for your comments Hani and looking forward to working more closely with you and your team at NHNN if we are successful in this application. I'm particularly looking forward to understanding from you and your colleagues how this kind of PROMS data can be used most effectively to support clinical decision-making and service design.

  29. Guest

    Anastasiia Kucherenko 6 months ago

    As a user researcher who regularly speaks with cancer patients, I definitely see an importance to allow patients to self-manage and remotely communicate their symptoms, needs, and well being to their care team.

    1. Great to hear Anastasiia - user research is definitely the most important part of what we do to build something that people with cancer actually want and will use day-to-day

  30. Guest

    Jamie Smith 6 months ago

    I speak to oncology patients on a regular basis as a community manager for Vinehealth. It is clear how much of a positive impact the Vinehealth app is having on patients quality of life & wellbeing. It is especially crucial now during the pandemic when many patients are shielding and are having to manage their own care, with limited access to their care team. The app is a vital tool to help support people living with cancer and is remarkable from my perspective - I wish it had been available when close family members of my own had been living with cancer.

    1. Thanks so much for sharing your experiences, Jamie - very much appreciated. Always looking for more feedback from patients so that we can improve the platform, especially at this time of uncertainty

  31. Hi. Great to see your idea. I'm working for the Health Foundation to identify opportunities for collaboration and support across Q Exchange.  Your idea fits closely with some other ideas posted around using apps and remote technology. It might be worth having a look at these and seeing if you can give some support/get feedback from them.  There are also special interest groups in Q around digital and primary care that you might want to contact for further feedback and to promote your idea. Good luck! Emma

    1. Thanks so much, Emma - I will reach out to the others for their feedback and input!

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