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Meet the team

Also:

  • Alison Robert, Manager, Tower Hamlets Council for Voluntary Services
  • Barts Health:
  • Helen Wensley, Outpatients Programme Director,
  • Ellen Sykes, Lead Patient Engagement and Advocacy Services,
  • Malika Atoussi, Head Bilingual Health Advocacy,
  • Abbas Mirza, Community engagement Lead,
  • Conor Byrne, Consultant (equity subgroup)
  • Sarah Wallace, Specialty Registrar Public Health.

What is the positive change that has emerged through new collaborations or partnerships during Covid-19 that your project is going to embed?

The rapid sale up of remote outpatient consultations, in particular video, has been key to maintaining services throughout the crisis; however video consultations also bring other well documented benefits to patients and staff and meet with key aspirations of the NHS plan to deliver more digitally enabled care.

Our recent post-video consultation survey revealed 82% of 1,927 patients would like to continue video consultations post-pandemic. Patient comment; “I experienced less anxiety from not having to travel to my appointment and in turn,  felt more calm and able to remember questions I wanted to ask”.  21 of 25 patients who don’t speak English, considered their experience of a video consultation to be ‘significantly better’ than face to face.

This work will be supported by key new collaborations between the video consultations implementation team at Barts Health, Bilingual Health Advocacy, BH ‘CoVOG equity improvement workstream’ and the Community Sector; including Tower Hamlets Council for Voluntary Services.

What does your project aim to achieve?

Digital exclusion and other barriers, such as language, have the potential to exacerbate inequalities in access to remote consultations. Approximately 7.5% Newham residents report they cannot speak English well (2017)

AIM

To support and inform the scale up of video consultations in non-English speaking communities:

1) Measure and understand the uptake within non-English speaking communities locally, specifically;

– proportion of non-English speaking patients offered, and accepting, video consultations

– proportion who do not attend

– the use of bilingual health advocates (BHAs) and family members

2) Explore the experience of video consultations from perspectives of non-English speaking patients, local communities and staff

3) Work with patients, community groups and other stakeholders to co-design and test the most promising change ideas with a cross-sector approach to addressing barriers and enhancing access; aiming to double the number of non-English speaking patients accessing successful video consultations during project. One promising idea is bilingual NHS volunteers conducting video ‘test calls’ with patients.

How will the project be delivered?

Through close working of a carefully chosen project team, working closely with members of the community and local charities to co-design and explore a combined community/ health approach, using QI methodology.

The day to day process owner will be Joanne Morris, an experienced project manager and QI coach, with extensive experience leading video consultations roll out. The core team will meet fortnightly, including;

–       Bilingual Health Advocacy Manager

–       Advocacy and outpatients staff delivering day to day operations

–       Community members

–       Clinician/s

–       Key members of BH ‘CoVOG equity improvement workstream’

Wider team will include; local charities, BH community engagement lead, BH head of volunteering, business intelligence unit. The project Sponsor and Lead of Advocacy Services will address project barriers at a senior level.

A small patient and public involvement group will be established.

We will report to the ‘CoVOG equity improvement workstream’ at BH and Tower Hamlets Together ‘Digital Access and Inclusion’ workstream.

How is your project going to share learning?

The work will be embedded in existing workstreams and teams within the Trust and shared with the Tower Hamlets Together ‘Digital Access and Inclusion’ workstream and other charities / community forums (working with Abbas Mirza). Ongoing progress and learning will be shared with these groups and acted on as the project progresses. A shared purpose with these groups will aid future sustainability.

Communication (including project results) will be co-designed with the community representatives, PPI group and bilingual health advocates; and translated into key local languages.

We will disseminate further with other Trusts through external networks such as on the Future NHS platform, through the Health Foundation and with contacts leading the roll out of video consultations in NHSE/I and Academic Health Science networks.

Project information and findings will be hosted on the Barts Health website (patient and clinician pages) and we plan to publish / present our findings for wider dissemination.

How you can contribute

  • We would like to draw on the expertise, experience and connections in the community to inform ideas and progress
  • To link us with what is going on elsewhere, signposting to other work
  • To share feedback and help disseminate findings
  • We would like to hear from anyone tackling similar challenges and work within the community; and anyone who would like to work with us in this project or future collaborations
  • We would particularly like to report to, and receive feedback from (as we progress), the already established special interest groups; 'Video consultations; how to set them up well and fast' and 'Understanding alternatives to traditional models of out patient care'

Plan timeline

16 Apr 2021 SET UP: Stakeholder mapping, recruit additional team memembers& community representatives
26 Apr 2021 SET UP: Agree project charter, SMART aims, define measures,data collection
26 Apr 2021 SET UP: Clarifying team roles, responsibilities; meetings diarised
26 Apr 2021 SET UP: Process flow mapping with team, developing shared purpose
3 May 2021 LAUNCH; presenting plans to ‘CoVOG equity improvement workstream’ at BH
6 May 2021 PPI co-design group meeting
17 May 2021 Baseline data; audit uptake, patient survey, BIU data, qualitative data
27 May 2021 Cross-sector consultation to identify initial change ideas, specific, actionable.
27 May 2021 PDSA cycle plans e.g improve awareness of advocacy booking process
31 May 2021 ONGOING - MONTHLY updates to equity improvement workstream at BH
31 May 2021 ONGOING - THT 'Digital access and inclusion' presentation and feedback
7 Jun 2021 Initial PDSA cycles start followed by ongoing measurement, improvement& consultation
23 Jun 2021 PDSA cycle planning e.g recruit and training volunteers, consent patients
23 Jun 2021 PPI meeting to discuss and co-design
28 Jun 2021 ONGOING PDSA cycles; co-designed - ensuring ongoing patient and staff engagement
29 Nov 2021 End of official PDSAs and focus on write up
31 Dec 2021 Submission of final report to Health Foundation, and wide dissemination

Project updates

  • 27 Sep 2021

  • 27 Sep 2021

    Summary update

    We have a diverse working group of stakeholders, meeting fortnightly, that have been key to progress so far. The group has collaboratively clarified scope, chosen speciality, and used several quality improvement tools to plan and drive the project. We have sought to bring together other individuals and teams who are working on related projects to share resources and knowledge, for example the Barts Health COVOG equity group (patient and staff survey, activity data analysis) and interviews from a staff member MSC project.

    Activities completed –

    • Clinician staff survey
    • Roma Focus Group discussion (13 non-English speaking participants; translated into Romanian and Polish)
    • Process mapping exercise for advocacy booking process, with wide representation
    • Focus group discussion with the Health Advocacy team at Barts Health
    • Post video consultation patient survey analysis
    • Set up and tracking progress on Life QI
    • Established collaborative driver diagram and impact / effect matrix to priorities change ideas

    PDSA cycles

    Following the above activities, and knowledge sharing, we have currently prioritised 5 PDSA cycles. These are as follows;

    PDSA cycles 1 & 2. Advocacy booking process; to provide greater access to the advocacy booking portal, standardisation of information on requests, awareness raising and improving communication. Update:

    • Renal team now set up to use generic login account on the advocacy booking portal, with a generic email address. 28 team members identified and sent details of new login details with instructions on how to use. Simplified flyer distributed to staff 16/09/21. Positive feedback received from a few members of staff 16/09/21.  11 bookings successfully placed using the generic email address in the first couple of weeks. Further process measures will inform progress.
    • Update the advocacy booking portal to include new prompts for specialty, type of appointment (phone, video or face to face) etc. A request for this update has been made.

    PDSA cycle 3. Pre-calling patients prior to outpatient’s appointment to offer advocacy assistance and digital assistance (patients need to be identified as having potential advocacy need). The purpose is to ensure patients are aware of appointment details, develop relationship and trust, offer support, increase confidence to take part in VC, capture learning and signposting. Explore possibility of changing phone appointments to video. Update:

    • Advocacy staff have been trained to provide pre-calls and outcomes sheet agreed.
    • We have had problems identifying suitable patients. Project lead is currently gaining permission for access to patients records. Plan start ringing patients in early October.

    PDSA 4. Advocacy and clinician training in dynamics of a 3 way consultation online, tips and tricks; to learn from our existing advocates and clinicians and patients who have done video consultations (and patients); what surprised them, what do they wish they had known, how best to handle the dynamics of a 3 way online consultation and improve patient experience. To also draw on other existing resources. Update: Focus group with the advocates took place on Monday 20th Sept. The focus group has highlighted other issues and important actions, this may well change the focus of this PDSA.

    PDSA 5. Working with Roma community to develop a more desirable and accessible VC service; to do an appreciative enquiry working with 2 or 3 members of the Roma community; what is good about Video Consultations and how can we make it more desirable, as well as what external resources can we plug into to make it more accessible? Promote the outcomes within the Roma community through community members.  Update: We would like to take this forward however due to the time frames of this project this PDSA cycle recommendations will be handed over to other groups in the Trust.

    Further detail on what we have learned so far –

    Advocacy activity data

    As anecdotal evidence suggests, there has been a large reduction in advocacy activity during the pandemic; however this did vary across services. The data below shows a much larger decrease in activity in the Renal clinic compared to Diabetes.

    Jan 2020 – April 2020 (pre-pandemic to early pandemic): Renal 151 advocacy requests, Diabetes 244 advocacy requests

    Jan 2021 – April 2021 (year later): Renal 45 advocacy requests, Diabetes 227 advocacy requests

    Clinician survey (March 2021)

    126 clinicians responded to a staff survey about the use of advocacy during the pandemic (March 2021). The survey revealed that only 50% of staff knew how to book an advocate for any appointment and only 28% knew how to book an advocate for a video consultation (similar for phone). 48% of staff think they have used advocacy less during the pandemic and 38% said they have had an appointment recently where they would have liked an interpreter but didn’t have one.

    Reasons why advocates have been used less during the pandemic;

    – Less appointments overall and particularly for those who don’t speak English (who struggle to engage with remote consultations) ‘patients who attend online tend to be more literate’

    – Staff believe it to be challenging and time consuming to include advocates in remote consultations, particularly video ‘I don’t know how and don’t have the time to find out’, ‘It’s enough of a faff getting video to work’

    – Relatives are more readily available to assist with translation when the patient is at home

    – Staff tend to use language line moer for phone consultations, rather than the hospital advocates (and there has been a big increase in phone consultations)

    – Some other specific issues reported including; advocates knowledge of how to join AA calls, advocates having technical issues connecting or don’t show up; poor call quality with more people; advocate contact details not accessible; needing an advocate immediately; problems with access to booking system

    – Note: Dynamics harder with a 3 way consultation on video; interpreter doesn’t always get chance to translate

    Focus group with Bilingual Health Advocates (Sept 2021)

    Attended by 3 health advocates and the advocacy manager. The health advocates had significant experience of using attend anywhere. The advocates considered video to be much better than phone and would like to see all phone appointments replaced by video for non-English speaking  and BSL patients. They felt some clinicians were reluctant to use video because they considered it more time consuming than phone or there was a lack of awareness of attend anywhere (AA) and how to include interpreters in AA consultations.

    They felt that they were far less effective over video compared to face to face; over video they felt they were ‘acting purely as translators, rather than advocates’. For face to face appointments the advocate normally sees the patient in the waiting area and can chat to them before hand; they then sometimes chat afterwards and the patient asks additional questions and the advocate can hand over additional information. On attend anywhere the ending is very final and there is no opportunity for the ’questions patients frequently ask on the way out’! ‘The human factor is missing via video’. They also miss the body language which helps them understand how the patient is feeling.

    Suggestions provided by the advocates

    1.     Have advocacy contact number on appointment letters – patients often can’t read their appointment letter and hence don’t even know their consultation is via video

    2.     Providing pre-calls for patients – Gloria checks patients known to her on CRS to see when their appointment is coming up and phones them in advance to check they know the details and to ensure she is booked (which she may not be otherwise)

    3.     Advise clinicians to try and keep to the appointment time when an advocate is booked if possible (or it may make it difficult for the advocate to attend)

    4.     Advise clinical team to contact advocates about any last minute changes – they may well still be able to attend!

    5.     For advocates to have 5 mins with patient before their appointment – This can help them go through concerns and the questions they wish to ask. They can also talk about how different an online call is; giving the advocate chance to speak; realising the end of the call is very final and the need to ask all their questions. Providing moral support and access to any further information the advocate might have.

    6.     Communication – consistent exchange of contact details between advocate and clinician

    7.     Advocates to have access to list of patients who have an attend anywhere appointment

    Roma focus group discussion

    13 members of the local Roma community attended an online focus group. 6 participants spoke Romanian (3 men and 3 women) and 7 Polish (1 man , 6 women), they all had little understanding of English and conversations were translated in two separate break out rooms.

    There was a strong consensus that most people in both Romanian and Polish speaking communities prefer face to face appointments (rather than video or phone) and there was a frustration that things had not returned to ‘normal’ now restrictions were being lifted.

    Literacy and language issues make it particularly difficult for remote consultations and there have been particularly poor experiences of phone consultations. There was little distinction between phone and video; only one participant had any experience of a video consultation. Many people in the Roma community also experiences digital exclusions issues; they often don’t have the internet (can’t afford a smart phone contract) or find that technology is not reliable or can’t ‘cope’ with technology.

    Trust seemed to be an issue. Trust in interpreters but also that video consultations could be for their benefit; they believed that remote consultations were for the benefit and convenience of the Doctor / nurse not the patient.

    Suggested actions following this focus group –

    – Ensuring patients are given a genuine choice between a video appointment and face to face appointment

    – Enable patients with no, or limited, access to the internet or technology to access community based interventions to address digital exclusion, such as digital access hubs or equipment loan (sign posting through local resource directory)

    – Increasing understanding of the benefits, as well as potential negatives, of video consultations in particular community groups (giving voice to those who have tried it).

    – Enable patients to request interpreters more easily e.g. via text response

    – Review the number of available interpreters (following patients request to increase the number)

    – Confirm with the community if text and email communication is preferable to letter (this came from one comment which needs to be confirmed); do they receive regular text reminders currently?

    – Further relationship building in the community and developing Trust in services.

    Process mapping exercise

    See process flow chart that summarises the process discussed in this meeting; and also the flyer for staff that was developed as part of the following PDSA cycles.

    Staff across the Trust inputted to development of the process flow chart, including; administration staff in central appointments, administration staff in the Renal clinic, Renal clinic management, Renal clinicians, advocacy team, hospital QI team. The flow chart maps out existing processes.

    Driver diagram

    Working collaboratively and drawing on knowledge gained above as part of this project, as well as existing knowledge, the following driver diagram was constructed (attached). The above PDSA cycles have come out of these discussions and relate to the driver diagram as follows;

    PDSA cycles 1& 2 relate to ’robust and smooth and clear administrative processes’, ‘clinician and admin knowledge and skills’ and change ideas 2.2, 3.2, 3.3 & 3.5.

    PDSA 3 relates to ‘advocacy contact with patients in advance of video consultation’ and change ideas 1.2 & 1.3.

    PDSA 4 also relates to ‘knowledge and skills’, minimising risk and change ideas 2.1, 3.3 & 4.2

    PDSA 5 relates to the wider digital exclusion issues.

    What could others learn from our experience of working with a range of stakeholders and collaborating across boundaries (geographical, professional, sector) – including what is working well and any challenges you have faced?

    As expected, the project has really benefited from having a diverse range of stakeholders, including patients, engaged and working together; from all parts of the system. Achieving this is difficult when people are currently under so much pressure.

    The project has required a lot of ‘ground work’ i.e. relationship building, understanding the pressures that people are under and developing trust so that people don’t feel judged but are keen to work together to make improvements. It has taken time to understand who the gate keepers are (e.g. for access to data, and access to teams), how teams and individuals prioritise work and how you can engage effectively with them and get work done jointly, when there are so many necessary competing priorities.

    What has worked for us –

    – Fortnightly project team meetings for 1 hour held online with a diverse range of staff. Online meetings have helped people from different sites regularly meet.

    – Ensuring team leaders / managers understand the purpose of the project and are engaged; therefore giving permission to junior members of staff to devote time to the project.

    –  Being aware of other related initiatives, particularly within the Trust and local community. There is currently a lot of interest in addressing health inequalities and several other initiatives have started that overlap with what we are doing, including a student project. We have therefore sort to bring all the related work together by including individuals in our team meetings, joining other groups and including the findings of others when making plans.

    – Engaging in other Trust groups with shared objectives. Related to the above, online meetings have enabled the project lead to ‘drop in’ on lots of other existing meetings to update on the project and to gain further input e.g. joining the existing health advocacy weekly catch up meeting online has been a great way to keep crucial communication going with the team without expecting them to attend lots of new meetings, or respond to lots of emails. As time has progressed and ‘buy in’ has developed the advocacy team now also attend the project team meetings.

    – Going to where people are physically and meeting them in person. Some informal conversations in person have also been incredibly helpful. For example, an email asking for feedback from 28 members of staff was only answered by two and the knowledge gained from those answers was very limited. By finding out where staff are based and ‘popping in’ has helped develop relationships and gain far more rich insight than would have been possible over email or phone. People were happy to stop and talk in person.

    – Going where the enthusiasm is! We presented the project to a range of community groups and asked for feedback. We only heard back from the Roma community group and hence have started by working with them and drawing out learning for others. The Roma group faces particular challenges of digital exclusions and we can learn a lot from them. Similarly we have focussed on working with the Renal clinic where there have been enthusiastic staff to work with us. Starting small!

    – The importance of working with patients is well recognised and in our project hearing the frustration of patients over remote consultations has been key to understanding that even if we theoretically ‘fix’ problems of digital exclusion, patients want choice and the disadvantaged patients we spoke to, with poor understanding of English, are not currently going to choose remote consultations (video or phone), given their experiences during the pandemic. This work touches on a lot of wider issues of Trust and engagement with the hospital / NHS and the impact of the pandemic on relationships with health services.

    – Providing volunteers with a contribution towards their time (a voucher). Recognising that people are busy and their time is valuable is important. We have found engagement is much better when people can see an immediate mutual benefit.

    – Keeping people’s interest and momentum by ensuring we actively involve them in meetings and actions.

    – Dedicated time. We have benefitted from the Health Foundations funding which has allowed the project lead to have dedicated time to organise activities, working long side others closely. At the moment the project lead is also gaining permission to access trust systems independently (clinical records and advocacy booking system), to lessen the burden on others. Although this is not sustainable at the end of the project, it can be useful for tracking measures and progressing the project so we can demonstrate if the changes tested are worth the investment of time (or potential reorganisation of roles) by others.

    Next steps for your project over the coming months?

    –  To progress PDSA cycles 1 – 3.

    –  Include recent learning in plans (particularly the results of the recent focus group with advocacy staff and informal feedback from the Renal admin team); modify (possibly abandon) PDSA cycle 4 accordingly.

    How can the community get involved in your project?

    It will be helpful to hear about other projects within the community that are addressing digital inequalities or others learning from video consultations (particularly changes in dynamics of consultations online) and the impact of the pandemic on relationships between patients and health services.

Comments

  1. Hello Joanne,

    I think it's a brilliant project. I'm not sure if you are only including BAME community or non-English speaking overall but I can certainly say that it would benefit to have video consultation for non-English speaking patients. There is nothing more terrifying than not understanding fully what is being said about your health. It can cause a lot of anxiety in patients and possibly delay treatment.

    English is not first language for my husband.He would definitely benefit form having video consultation where he could freely describe the problem and understand if there was somebody for him to translate (apart from me).

    If you need any help with your project please feel free to contact me and I'd more than happy to help.

     

     

    1. Hi Barbara,

      Thanks for you post and good to hear from you - apologies for my very slow reply, I have had a lot of leave last couple of weeks..

      Great to hear about your interest in this; the remit is any non-English speaking patients. We know we have a big problem here but we are not even quite sure how big, so understanding the problem will be the starting point! I'm also aware there is lot going on already around digital inclusion so hoping to link up with other good initiatives. Do you know if there is anything going on in your area?

      Very best wishes,

      Jo

  2. Guest

    Anna Burhouse 11 months, 1 week ago

    What a great idea this is. I couldn't agree more that unless we think about how to take an inclusive approach to virtual consultation we may inadvertantly miss opportunities to  decrease health inequalities/digital exlusion. Reading your proposal made me wonder what underlying co-production processes might work best for you? It will be important to understand what the current barriers to access are and if they are just about language, or whether there are other important factors for certain communities? It would be good to hear how you plan to include people and if there is an opportunity to work closely with community and/or voluntary sector groups to test out some approaches in the field?

    Great work :)

     

    1. Dear Anna,

      Thanks so much for your valuable response. I have made some changes to try and be clearer about the community engagement aspects of the proposal and included a more formal PPI group to consult / work with. So thanks for the helpful feedback. I agree that it is so important to properly understand the problems (plural) as part of trying to improve and we need to include real ongoing co-design with the community and staff to do this, involving them in solutions too!

      We have already been in touch with a number of charities who are interested to work with us, including Tower Hamlets Council for Voluntary Services. So, we plan to co-design changes with cross sector input (involving NHS staff too), tapping into work already going on if appropriate e.g  ‘language tutor’ volunteers (through Social Action for Health) or NHS volunteers. But we will remain open minded to the most promising change ideas.

      Thanks again.

      Bw, Jo

  3. This sounds interesting. My project idea is also around digital consultations too - teletherapy and we work in a diverse borough. I'm keen to make sure we stop and reflect before moving full steam ahead to more and more digital appointments. In Hackney where we work there is huge digital inequalities and we have experienced issues such as parents not having enough data on their phone for a consultation, not being able to access all of the features that others can because they are using a phone (rather than a desktop), or simply not acessing digital learning and teletherapy. There's also the cultural norms around digital use and access to consider.  BUT access to advocacy and interpreting has worked well in some cases.

    I'd be interested to see if there are better ways to communicate about digital appointments, better ways to manage the interaction and/or additional technology that could be used to support consultations - the use of visuals or shared screens could really support consultations?

    It would be good to connect as we are neighbours!

     

    1. Hi Annabelle,

      Good to hear from you, thanks for getting in touch. Your project sounds great and very worthwhile.

      Yes digital inequalities are becoming a big issue; often with the people who stand to benefit the most unable to access digital services. My idea is currently focused on Non-English speaking patients as we have such an ethnically diverse community within BH (as I'm sure you do!) and I believe the team we have can make a huge difference there.

      We are also aware the issues of digital exclusion are complex with often confounding factors and require creative and potentially collaborative solutions. We will be interested to stay in touch and see how your project also develops.

      Very best wishes, Jo

  4. Hi Joanne,

    Myself and my colleague Emma Adams (Health Transformation Partnership) are supporting the Health Foundation this year by fostering conversations between Q members and encouraging collaboration. We were Exchange applicants last year, so we’re hoping that our experience will help us to help others, as their ideas take shape.

    I wondered if you'd yet had chance to read the idea: "Addressing health inequalities in BAME communities through advocacy." Within this, they are using third sector support to help non-English speaking patients engage with the health system. Which got me wondering whether you are engaged with people already using consultations, or whether you'd be trying to improve access to those potentially harder-to reach members of the community. Either way, I thought I'd highlight their project incase you felt it was helpful to make a connection.

    Best of luck with your idea.

    1. Dear Peter,

      Thank so much for your comment and the useful connection. So far we had focussed on patients already known to us within Barts Health. Obviously there has been a massive shift to remote consultations, with video arguably having added benefits over phone. We believe very few of our non-English speaking patients are accessing video consultations (and we are not sure about phone) and it is about understanding why and looking at promising interventions to address barriers and improve access.

      I am aware there is some great work going on in the community and I should have emphasised our engagement with that; linking with promising interventions already going ahead or planned - so thanks for the prompt. I had put up another idea title which was going to explore our joint work with the community more fully but maybe I'm best bringing both idea together - would appreciate your thoughts on that!

      The other ideas was - 'Understanding and addressing digital exclusion and inequalities in access to video consultations through collaborative working between patients, the NHS, local government and community organisations'

      Many thanks again,

      Bw, Jo

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