Meet the team
Consultant Nephrologist & Physican
Royal Berkshire NHS Foundation Trust
- England - Oxford
Transformation Lead Long Term Conditions
Berkshire West CCG
- England - Oxford
- Tim Ringrose
- Becca Sharman
- Heike Veldtman
- Rebecca Bowers
- Kathy Green
- Raghuv Bhasin
What is the challenge your project is going to address and how does it connect to your chosen theme?
Berkshire West ICP has made big changes, just in 18 months, in how patients with kidney disease are cared for across primary & secondary care: adopting virtual services & better supporting patients in the community. 30% new outpatient appointments are avoided & a further 40% can be managed differently providing significant financial, social and environmental benefits to the local community. (https://www.rcplondon.ac.uk/projects/outputs/outpatients-future-adding-value-through-sustainability)
We have identified an unmet need in how patients receive & access information to improve self-care. Healthcare professionals struggle to explain often complex information to patients within time-limited appointments & current practice is to give information leaflets: this becomes increasingly problematic in virtual consultations. Poorly informed patients are less likely to adhere to advice & medication, leading to poorer outcomes, poor patient satisfaction & greater cost on health service providers
What does your project aim to achieve?
European health literacy survey states 47% adults have “insufficient” or “problematic” health literacy, whilst 61% people with “limited” health literacy have >1 long term health condition
Restructuring outpatients has identified a gap. The aim of this pilot is to evaluate how patients best understand & want to consume health information plus a way to deliver this information digitally. We plan to repurpose current information leaflets to test 2 new methods of delivery: text information & immersive interactive animation, both made available to patients on their mobile devices. This will be evaluated against existing printed leaflets (this written content previously co-produced with patients)
Results will help shape development & delivery of an extended programme focused on chronic kidney disease, to optimise consultations, integrate with the new model for outpatients & improve patient experience – delivering a fully holistic model to be adopted by other therapy areas and scaled nationally
How will the project be delivered?
90 CKD patients will be recruited in primary care from 2 pilot sites and will be given information in 1 of 3 formats (a printed leaflet, a digitised version of the print material or a short immersive, interactive animation either in virtual reality (VR) at the clinic or to be viewed on the patient’s smart phone or tablet)
The digitisation of patient information will be managed by Cognitant Group, a health technology company in partnership with Royal Berkshire NHS FT. It will be developed from existing materials (already co-produced with patients) & both digitised forms will be made available via an app, Healthinote, which allows clinicians to recommend information to patients via a link or QR code
Patient’s understanding of CKD will be tested before and after using the provided information using a survey. Patient’s preferred methods of delivering education will also be evaluated through questionnaires
Delivery is through our secondary and primary care renal/GP team reporting to ICP Board
What and how is your project going to share learning throughout?
Digitising the way patients can access & understand more about their condition & self management has relevance far beyond CKD.
The project aims to test out proof of concept of different approaches with adapting existing materials; the learning gained will help inform further design iteration with patients/staff/local communities & hard to reach groups
The learning will enable patients & carers to access patient information in a format that works for them in a style & content that helps them understand more about their condition & how to navigate support systems.
Any learning has wide applicability & transferability to other conditions; the wider ICP outpatient transformation programme means there’s a vehicle to support wider rollout with system healthcare partners. Sharing learning, gaining feedback & creating important links through the Q community will be through regular blog, social media, film, patient story, publication, link to other social & patient networks, live patient feedback
How you can contribute
- We would welcome feedback on our approach to test out the use of modern immersive technologies in helping to develop relevant, responsive and accessible patient information
- Have we made the connection to this important area clear enough in how this connects to our new models of outpatient care already in place? And that this approach would help strengthen what we are already doing by addressing this important gap?
- Have we got the measures right?
- What risks should we give attention to more?
- Do Q members feel that the learning gained for this group of patients could be relevant to themselves and/or their own patients?
- Could the shared learning approach be more creative?
- We are keen that this is understood to be a collaborative and co-production approach - have we made that clear enough- the patient information to be tested as already been developed with patients - beyond this initial testing phase we want patients to get involved even more in further iterations
|6 Jan 2020||Phase 1: initiation Approval of project plan (all)|
|6 Jan 2020||Phase 1: initiation Kick off meeting (project lead)|
|13 Jan 2020||Phase 2: Questionnaire Design Patient knowledge test|
|13 Jan 2020||Phase 3: Prototype dev: Content development: Storyboard solu|
|20 Jan 2020||Phase 2: Questionnaire Design Leaflet quetsionnaire|
|20 Jan 2020||Phase 3: Prototype dev: Content development:Review& approval|
|27 Jan 2020||Phase 2: Questionnaire Design Digital print questionnaire|
|27 Jan 2020||Phase 3: Prototype dev: Content development:scriptwriting|
|3 Feb 2020||Phase 2: Questionnaire Design Animation questionnaire|
|3 Feb 2020||Phase 3:Prototype dev:Content development:script edit,approv|
|10 Feb 2020||Phase 3: Prototype dev: Content development:rev& approval|
|24 Feb 2020||Phase 3: Prototyping:Prototype development: short demo clip|
|2 Mar 2020||Phase 3: Prototyping: review & approval|
|16 Mar 2020||Phase 4:Full build and implementation: technical: build|
|6 Apr 2020||Phase 4:Full build & implementation: technical:user testing|
|13 Apr 2020||Phase 4:Full build and implementation: technical: Amends|
|20 Apr 2020||Phase 4:Full build and implementation:Implement-final approv|
|20 Apr 2020||Phase 4:Full build and implementation:Implement:set up track|
|27 Apr 2020||Phase 4:Full build and implementation:Optimisation & release|
|4 May 2020||Phase 5:Roll out in pilot sites:Pilot centre training|
|11 May 2020||Phase 5:Roll out in pilot sites:patient recruitment|
|18 May 2020||Phase 5:Roll out in pilot sites:information delivery|
|10 Aug 2020||Phase 5:Roll out in pilot sites:Data collection written|
|24 Aug 2020||Phase 5:Roll out in pilot sites: Data collection Digital|
|7 Sep 2020||Phase 5: data interrogation- results analysis|
|5 Oct 2020||Phase 5: data interrogation -report creation|
|16 Nov 2020||Phase 5: data interrogation - publication|