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Lesley Goodburn (She/Her)

Experience of Care Lead Clinical Programmes

NHS England

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Biography

Lesley has worked in patient experience and public and patient involvement for the last 15 years after a career in the customer service industry. She now works as Experience of Care Lead for National Clinical Programmes at NHS England.  In this role Lesley focusses on experience of care across staff, patient and carer experiences looking through the lenses of qualitative, quantitative and narrative data. Triangulating bot the three types of experience and the types of data  to provide insight to understands experience of care. She has developed storytelling approaches across provider organisations and NHS England sharing digital stories for improvement and through the work of the NHSE Quality Board has initiated four programmes of national improvement work through the sharing of digital stories.

She has shared her personal story of the death of her husband Seth via a play, a film and educational package called Seth's Story. Find out more about her personal  improvement work which has three aims :-

  • Raise awareness of signs and symptoms of pancreatic cancer.
  • Improve psychological support for patients and families given a late terminal diagnosis with a short prognosis.
  • Improve end of life care

You can find out more about Seth's Story here https://www.hospiceuk.org/what-we-offer/courses-conferences-and-learning-events/educational-plays/homeward-bound


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