Imagine you are living in a care home. It is likely that you would still want to continue with every aspect of your life as you had before you lived there. To hold hands or cuddle with a loved one. To share a bed and maintain a sex life with a partner. Perhaps you might like to seek a new partner if single. These are things that many of us take for granted.
Alzheimer’s Society has been working with Good Innovation on a ‘sprint’ project. This involves moving rapidly through an intense cycle of learning, investigating, finding solutions and experimenting. The aim is to find a solution as fast as possible through the following phases:
During this phase, our heads were bursting with facts, opinions and experiences from reading around the topic. When we combine sex and intimacy with age, dementia and care homes, it seems the door is thrown wide open for judgments and debate.
Through our reading, we came across the often mistaken belief that older people don’t have sex. There was even at times a sense of disgust that older people would have sex. However, these feelings often changed when people imagine themselves living in a care home. They would base this on how they would like to live their own lives.
We spoke to experts including the research team from OPUS (Older People’s Understanding of Sexuality), our own staff members, volunteers and the healthcare group BUPA. This helped to make sure we were asking the right questions during the investigate stage
We visited six care homes around the country and spoke to residents living with dementia. We also spoke with their families, care home staff and care home managers.
From these conversations, we grouped together similar viewpoints. We created anonymous ‘personas’ that were useful for testing potential solutions.
These are some extracts from the personas:
“I love my wife dearly, I would like intimacy to continue, holding hands, a kiss on the cheek, having a cuddle lying on the bed together, these things have always been important to us.”
– Extract from a partner’s persona
“I could never see my mother in a relationship with anyone other than my dad. I think this is down to the dementia.”
– Extract from a family member’s persona
“I still have needs. I don’t have a man, so there is no one to cuddle or kiss.”
– Extract from a persona of an individual living with dementia
We held a creative workshop that brought together a large group of experts on the subjects of care homes, sex, intimacy and dementia. As a result, we generated over 70 ideas for solutions from which we chose our top five.
We exhibited these solutions in an ideas gallery in Alzheimer’s Society’s central office. We asked staff and volunteers to vote on their favourite idea and provide feedback.
Next, we took the top two ideas from the gallery to a ‘Dragons’ Den’ style pitch.
The top two ideas were:
•Follow your heart – a tool to help staff follow best practice in the moment when they come across situations involving sex or intimacy. The tool includes a poster with rules of thumb to help with decision-making and scenarios to show how the rules of thumb can work in practice.
•Lifting the lid on intimacy and sex in care homes, a workshop in a box – a pack for care homes with everything needed to run in-house sessions to help emb and create a new internal culture around sex and intimacy.
The ideas were presented to Michael Dent, our Director of Fundraising; Helen Quinn, our Knowledge Officer for Legal and Welfare Rights; Angela Clayton Turner, a volunteer from our Research Network who cared for her husband; Joanne Howcroft, Dementia Lead for Service Improvement from BUPA; and Rebecca Jarvis, Programme Director at the South London Health Innovation Network.
Both solutions were positively reviewed by our panel and we are planning how they will be taken forward to the experiment stage.
During this final stage, we will test our solution over a short period to see if it works in the real world.
Our goal is to have our solution adopted and championed by care homes. Ultimately, we want to enhance the well-being of care home residents living with dementia.
Watch this space for more information as we test our solutions and share our findings over the coming weeks!